Why One Blog for Early-Onset Scoliosis Exists
“Your child has progressive early-onset scoliosis, and it can be fatal if it isn’t treated.” For most parents, the news can be devastating and many times, the current treatments are more traumatic than helpful. This is why the blog, Scoliosis Innovations, was built—to provide parents a place to vent their frustrations, ask about different options, or share their hopes and experiences.
The blog — http://scoliosisinnovations.wordpress.com —is funded by the medical device company Ellipse Technologies, Inc. and is designed to unite families globally. Early-onset scoliosis (EOS) is a rare condition that affects a small population of very young children. If not corrected, EOS can eventually interfere with lung function and growth and can be fatal. Unfortunately, current treatments are limited. Young patients implanted with traditional growing rods that are used today may undergo up to two surgeries per year for several years, which can significantly increase complications and trauma.
Currently, finding information about EOS online can be challenging for many families. The Scoliosis Innovations blog focuses on the specific needs of EOS families. It unites families globally and offers the chance for families to do the following online:
- Meet other people who are having similar experiences, which
can also lead to lasting friendships
- Ask questions about topics or the condition they may not understand
- See and hear physicians or families share their knowledge and experience
- Learn about the newest technologies or breakthroughs in the medical treatments or alternative therapies that are successful
Ellipse Technologies, Inc. is a medical device company that has developed magnetic growing rods being used in multiple countries, but not yet available in the U.S. The magnetic growing rods are attached to one or both sides of the spine. Following surgery, these rods can be lengthened non-invasively as the child grows using an external remote controller. Rare earth magnets inside the rods communicate with the External Remote Controller (ERC) and allow physicians to modify the length of the rods without surgery. For more information, visit www.ellipsetech.com.
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Marita Gomez - 630-936-9105
Michael Lassiter - 847-466-1553