﻿<?xml version="1.0" encoding="utf-8"?><rss version="2.0" xmlns:media="http://search.yahoo.com/mrss/"><channel><title>Cision News</title><link>https://news.cision.com</link><description>Cision is the leading global provider of media research, distribution, monitoring and evaluation services. With over 40 locations throughout the world, Cision provides the insight, expertise and intelligence that improve performance and build reputations.</description><pubDate>Tue, 09 Jun 2026 23:58:51 GMT</pubDate><image><title>Cision News</title><width>146</width><height>60</height><link>https://news.cision.com</link><url>https://news.cision.com/Content/img/news-logo.png</url></image><item><title>New charity and pharmaceuticals come together to raise awareness of immune deficiency diseases</title><link>http://news.cision.com/ukpips/r/new-charity-and-pharmaceuticals-come-together-to-raise-awareness-of-immune-deficiency-diseases,c9333477</link><guid isPermaLink="false">cision1154646</guid><description><![CDATA[A new charity - UKPIPS (United Kingdom Primary Immune-deficiency Patient Support) - and some of the leading UK pharmaceutical companies are set to discuss the support, treatment and diagnosis of people living with a Primary Antibody Deficiency (PAD), and other Primary Immune Deficiencies (PID)
A Primary Antibody Deficiency is where the immune system cannot make antibodies and means that something like the common cold or a ‘flu bug, which a person with a normal functioning immune system will eventually shake off, can seriously cause damage to a person with a PAD – even to the point where it]]></description><pubDate>Mon, 12 Nov 2012 14:25:48 GMT</pubDate></item><item><title>Sick teenager refused treatment due to his postcode</title><link>http://news.cision.com/ukpips/r/sick-teenager-refused-treatment-due-to-his-postcode,c9272713</link><guid isPermaLink="false">cision507033</guid><description><![CDATA[A seriously ill Northern Ireland teenager has been told he is not eligible for a potentially life-saving drug due to his postcode. 13 year old Curtis Croskery from Killyleagh, County Down needs a specialist drug called polyglobin. While this has been approved for other patients in England, Curtis’s distraught mum, Lorraine Croskery, says that the Belfast Trust in NI are refusing to pay for it as they say it is unlicenced.
Curtis was born with a rare genetic condition – agammaglobulinemia – which means he has a severely compromised immune system, and his body is unable to fight infection,]]></description><pubDate>Wed, 13 Jun 2012 15:25:22 GMT</pubDate></item><item><title>New patient based group highlights immunodeficiency diagnosis and treatment gaps, and provides support</title><link>http://news.cision.com/ukpips/r/new-patient-based-group-highlights-immunodeficiency-diagnosis-and-treatment-gaps--and-provides-suppo,c9248852</link><guid isPermaLink="false">cision481993</guid><description><![CDATA[UKPIPS (United Kingdom Primary Immune Deficiency Patient Support) is a new national patient-run and patient-lead organisation dedicated to people with Primary Antibody and Immune Deficiencies and their carers. It offers them information, advice, support and hope. UKPIPS is currently seeking charitable status and has a highly regarded Medical Advisory Panel.
To coincide with World Primary Immune Deficiency Week, Liz Macartney, Co-ordinator and a Trustee of UKPIPs (http://www.ukpips.org.uk/), comments: “There is currently little support or information for people living with a primary antibody]]></description><pubDate>Thu, 19 Apr 2012 13:23:25 GMT</pubDate></item></channel></rss>