Cision Wire http://news.cision.com/ Cision is the leading global provider of media research, distribution, monitoring and evaluation services. With over 40 locations throughout the world, Cision provides the insight, expertise and intelligence that improve performance and build reputations. Wed, 22 May 2013 15:21:53 GMT Cision Wire 120 32 http://news.cision.com/ http://news.cision.com/ui/images/CisionLogoSmall.gif New charity and pharmaceuticals come together to raise awareness of immune deficiency diseases http://news.cision.com/ukpips/r/new-charity-and-pharmaceuticals-come-together-to-raise-awareness-of-immune-deficiency-diseases,c9333477 cision1154646 A new charity - UKPIPS (United Kingdom Primary Immune-deficiency Patient Support) - and some of the leading UK pharmaceutical companies are set to discuss the support, treatment and diagnosis of people living with a Primary Antibody Deficiency (PAD), and other Primary Immune Deficiencies (PID)

]]> Mon, 12 Nov 2012 14:25:48 GMT Sick teenager refused treatment due to his postcode http://news.cision.com/ukpips/r/sick-teenager-refused-treatment-due-to-his-postcode,c9272713 cision507033

A seriously ill Northern Ireland teenager has been told he is not eligible for a potentially life-saving drug due to his postcode. 13 year old Curtis Croskery from Killyleagh, County Down needs a specialist drug called polyglobin. While this has been approved for other patients in England, Curtis’s distraught mum, Lorraine Croskery, says that the Belfast Trust in NI are refusing to pay for it as they say it is unlicenced.

]]> Wed, 13 Jun 2012 15:25:22 GMT New patient based group highlights immunodeficiency diagnosis and treatment gaps, and provides support http://news.cision.com/ukpips/r/new-patient-based-group-highlights-immunodeficiency-diagnosis-and-treatment-gaps--and-provides-suppo,c9248852 cision481993 UKPIPS (United Kingdom Primary Immune Deficiency Patient Support) is a new national patient-run and patient-lead organisation dedicated to people with Primary Antibody and Immune Deficiencies and their carers. It offers them information, advice, support and hope. UKPIPS is currently seeking charitable status and has a highly regarded Medical Advisory Panel.

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