IFPA launches survey to identify strategies for building a better world for people with psoriasis

At the annual World Psoriasis Day Supporters Training Meeting in Frankfurt, June 8, the International Federation of Psoriasis Associations (IFPA) announced that it is launching an online survey to help identify the tools needed to improve the lives of the more than 125 million people who have psoriasis. 

(Stockholm, June 13, 2014 )

Psoriasis is a serious, chronic, inflammatory, non-communicable disease for which there is currently no cure. According to a report from the WHO, the disease affects around 2 percent of the global population, with an even higher prevalence in some countries. Recently, the 67th World Health Assembly adopted a resolution on psoriasis, encouraging the WHO member states to actively engage with civil society to create awareness of psoriasis “in particular through activities held every year on 29 October” [1] .

World Psoriasis Day 2014 – “Building a better world for people with psoriasis”
Every year on October 29, IFPA and its member organizations raise awareness of psoriasis through World Psoriasis Day, a global campaign by the patients for the patients. This year’s World Psoriasis Day theme is “Building a better world for people with psoriasis” and IFPA invites all stakeholders to join the many activities that will be arranged all over the world on and around this theme.

At the annual World Psoriasis Day Supporters Training Meeting, which was held on June 8 in Frankfurt am Main, Germany, IFPA announced the launch of an online survey on the World Psoriasis Day 2014 theme.

Josef de Guzman, Chairman of the IFPA World Psoriasis Day Steering Committee comments:
“We now have a WHO resolution recognizing psoriasis as a serious, noncommunicable disease. But what other tools does the global psoriasis community feel are necessary to improve their situation worldwide? That is what IFPA and our member countries wish to find out by launching this online vote, and we encourage people with psoriasis, their family members and the physicians that treat them to participate in this important survey.”

Identifying strategies for the future
The survey, which contains 17 different “tools”, aims to identify strategies and activities that IFPA, its members and other stakeholders can use to advance psoriasis education, advocacy and awareness. Respondents can choose up to five tools as well as make their own suggestion.

Preliminary results of the survey will be presented on World Psoriasis Day and the final results will be announced at the 4th World Psoriasis & Psoriatic Arthritis Conference in Stockholm July 8-11, 2015.

Link to the survey

Link to the WHO Psoriasis resolution


About:

The International Federation of Psoriasis Associations (IFPA)
The International Federation of Psoriasis Associations (IFPA) is the non-profit umbrella organization for the majority of psoriasis associations from around the world. Today IFPA has 50 member associations covering all regions of the world. IFPA unites psoriasis associations so that their global campaign for improved medical care, greater public understanding and increased research will improve the lives of the more than 125 million people who live with psoriasis and/or psoriatic arthritis.

You can read more about IFPA, our members and our activities on our website www.ifpa-pso.org .


[1] 67th World Health Assembly, document A67/VR/9

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About Us

The International Federation of Psoriasis Associations, IFPA, is a non-profit umbrella organization that gathers psoriasis patient associations from around the world. Today IFPA has 54 member associations covering all regions of the world. IFPA unites psoriasis associations so that their global campaign for improved medical care, greater public understanding and increased research will improve the lives of the more than 125 million people who live with psoriasis and/or psoriatic arthritis. IFPA is actively campaigning for recognition of psoriasis as a serious, noncommunicable disease by the World Health Organization’s member states. You can read more about IFPA, our members and our activities on our website www.ifpa-pso.org.

Documents & Links

Quotes

[W]e encourage people with psoriasis, their family members and the physicians that treat them to participate in this important survey
Josef de Guzman, Chairman IFPA World Psoriasis Day Steering Committee