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Families of Spinal Muscular Atrophy Committed $2.5 Million to Funding SMA Research in 2012

Elk Grove Village, IL. December 31, 2012--Families of SMA is dedicated to creating a treatment and cure for Spinal Muscular Atrophy by funding and advancing a comprehensive research program, which includes: Basic Research to reveal the best ways of making SMA drugs; Drug Discovery to make practical new drugs, and; Clinical Trial resources to help test new drugs. Families of SMA committed new funding to the following SMA research projects during 2012:-$710,000 for Basic Research.-$1,450,000 for Drug Discovery.-$110,000 for Clinical Trial Resources.-$200,000 for the 16th SMA

Families of SMA Announces $1.4 Million Planned for Next Round of Spinal Muscular Atrophy Research Funding.

Elk Grove Village, IL. June 7, 2012. Families of Spinal Muscular Atrophy (FSMA) is dedicated to creating a treatment and cure for Spinal Muscular Atrophy (SMA) by funding and advancing a comprehensive research program.  The organization is planning to award $1.4 Million in new research funding over the next 6 months.  This new round of research funding will be allocated into three areas: 1)Basic Research to understand the disease and provide ideas for drug making, 2)Drug Discovery to develop new SMA therapies, and 3)Clinical Research to help test new drugs effectively and to improve

Families of SMA Awards New Funding to Advance a CNS Delivered Gene Therapy for Spinal Muscular Atrophy

Elk Grove Village, IL. May 2, 2012-Families of SMA is pleased to announce the award of up to $750,000 for an important new grant to Dr. Brian Kaspar at Nationwide Children’s Hospital. This award will support preclinical development of a CNS-delivered Gene Therapy for Spinal Muscular Atrophy. With funding from FSMA, Dr. Kaspar’s team will initiate the studies needed for an Investigational New Drug (IND) application for this therapy to the Food and Drug Administration (FDA). “Families of SMA is excited to be awarding new goal-directed drug discovery funding for this gene therapy program.

Update on the Spinal Muscular Atrophy Drug Development Pipeline from Families of SMA

Elk Grove Village, IL. January 19, 2012. Developing new therapies to treat and ultimately cure SMA is the driving force behind Families of SMA. To achieve this goal, Families of SMA aggressively invests in drug development research, funding the most successful and innovative scientists and organizations. Several key details demonstrate the great progress being made:1) Programs are advancing into the clinical trial stage of testing.There are now 3 novel programs actively being testing in clinical trials for SMA.2) There is a broad diversity of approaches in development.This

Families of Spinal Muscular Atrophy Releases SMA Care Series Booklet on Nutrition Basics for SMA

Elk Grove Village, IL. January 10, 2012--“Nutrition Basics: Fostering Health and Growth for Spinal Muscular Atrophy” is Families of SMA’s newest release of the SMA Care Series Booklets, which are provided, free of charge to all SMA families, as well as SMA Care Providers worldwide.This 32 page booklet is focused on fostering health and growth for Spinal Muscular Atrophy. Nutrition is a complex issue for anyone, but especially for children and adults with SMA. As you go through this booklet you’ll see that SMA may present some nutritional challenges, but by educating yourself, talking to

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