Lincolnshire Charity Plea for Auction Donations

News release

21st May 2013

The Ally Cadence Trust, based in Lincolnshire, is asking businesses to donate items for auction at its biggest annual fundraising event.

The Butterfly Ball, which is being held at the Petwood Hotel in Woodhall Spa on 28th September, will be hosted by Emma and Karl Humphries, the founders of the Ally Cadence Trust.

Based in Walcott near Sleaford, the charity provides support, advice and vital equipment to children and families affected by spinal muscular atrophy, a genetic disorder that is currently incurable and often fatal. The trust was founded in 2009 after Ally Cadence, the daughter of Emma and Karl, died aged six months, twelve days after being diagnosed with the disorder.

The trust aims to raise £30,000 in funds this year and it is hoped that the 2013 Butterfly Ball will bring in a significant portion of this target.

So far, the charity has managed to acquire a number of smaller items for the auction, but needs to source larger donations such as weekend breaks, spa packages and experience days to help raise vital funds. It is therefore asking businesses to step in and donate whatever they can to the evening.

 “The Butterfly Ball is very important to us as a charity, as it can bring in significant money for the trust, which enables us to help more families and acquire better equipment,” said Emma.

“The auction is a major part of this fundraising attempt and we would like to be able to offer our guests something really special to bid on”.

Tickets to the event are priced at £45 each and the night will consist of dinner, dancing, an auction and live music.

If you or your company would like to donate an item to the Butterfly Ball auction, please call Emma on 0800 23 43 762 or email emma@actsma.co.uk.

Ends

Notes to editors:

About the Ally Cadence Trust for Spinal Muscular Atrophy

• The trust was set up in March 2009 by Karl and Emma Humphries in memory of their daughter Ally Cadence. It became a registered charity in December 2009
• Since launching it has raised more than £50,000 to help people affected by the disease get access to specialist equipment
• Visit www.actsma.co.uk for more information about the charity and www.allycadence.co.uk to read Ally’s story
• Spinal Muscular Atrophy is a genetic disorder that affects nerve cells so that muscles can't be used and become wasted, or atrophied. The nerve cells become damaged, breaking the link between the brain and the muscles. As a result, the muscles can't be used and waste away. This can lead to problems with breathing as well motor activities such as crawling, walking, feeding and head control.


Cesca Bickley
Shooting Star PR
01522 528540
cesca@shootingstar-pr.co.uk
www.shootingstar-pr.co.uk
t: @cescabick

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Quick facts

The trust was set up in March 2009 by Karl and Emma Humphries in memory of their daughter Ally Cadence.
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Since launching it has raised more than £50,000 to help people affected by the disease get access to specialist equipment
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Spinal Muscular Atrophy is a genetic disorder that affects nerve cells so that muscles can't be used and become wasted, or atrophied.
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Quotes

The auction is a major part of this fundraising attempt and we would like to be able to offer our guests something really special to bid on
Emma Humphries, trustee of Ally Cadence Trust