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Mortality in Lupus: The Untold Story

By Sandra C. Raymond, President & Chief Executive Officer, Lupus Foundation of AmericaLupus is an autoimmune disease that can impact any part of the body. This prototypical autoimmune disease, affecting millions of people worldwide, causes a wide range of serious and life-threatening consequences that are challenging to bring under control because of a lack of adequate treatments. Over the years, pioneering physicians, using therapies borrowed from other diseases, have painstakingly developed treatment regimens that have helped to reduce mortality associated with lupus. Unfortunately,

Lupus Foundation of America Statement on Successful Results of Phase IIB Clinical Trial of Voclosporin

Trial results offer hope of a more effective and tolerable treatment option to manage lupus-related kidney disease.Today Aurinia Pharmaceutical Company announced positive top-line results of a Phase IIB clinical study of voclosporin, a potential new therapy option for people with active lupus nephritis (lupus-related kidney disease).  The study met its primary endpoint of achieving complete remission in a statistically significant number of study participants who received voclosporin. More details about this study are available through the company’s news release 

Lupus Foundation of America Announces Collective Data Analysis Initiative Results at 2016 EULAR Congress

First-of-its-kind study may help expedite the delivery of new and safer therapies for lupusWASHINGTON, DC - June 9, 2016 – Today, the Lupus Foundation of America announces results of a new study that could expedite the delivery of new and safer therapies to people with lupus.  The data is being presented during the 2016 European League Against Rheumatism (EULAR) Congress , a major European medical conference focusing on the field of rheumatology in London, England.                                                                The study is part of the

Lupus Foundation of America Applauds Congressional Action to Expand Lupus Research

Defense Appropriations bill includes $5-million lupus research programThe Lupus Foundation of America praises the Congressional Lupus Caucus Co-Chairs – Rep. Thomas J. Rooney (R-FL), Rep. William Keating (D-MA), Rep. Ileana Ros-Lehtinen (R-FL), Rep. Eddie Bernice Johnson (D-TX) – and the U.S. House of Representatives Appropriations Committee for passing an appropriations bill that includes a provision for funding a lupus specific research program in the Congressionally Directed Medical Research Program (CDMRP) at the Department of Defense (DoD). Today’s vote is the culmination of more

Coolibar Joins the Lupus Foundation of America to Help Solve the Cruel Mystery

Sun protective clothing company is raising awareness and support for people with lupusWashington, D.C. – The Lupus Foundation of America (Foundation) is excited to announce a partnership with Coolibar, a maker of sun protective apparel, to raise awareness of lupus and support those affected by its brutal impact.                                                                          Coolibar is supporting the Foundation as a sponsor of its national Walk to End Lupus Now® events in Florida and California and will help promote lupus awareness this May during Lupus Awareness Month.

LUPUS FOUNDATION OF AMERICA KICKS-OFF LUPUS AWARENESS MONTH

Urges the Public to Take Action to Create a Future with NO LUPUSDuring May the Lupus Foundation of America (Foundation) is urging the public to get to KNOW LUPUS  and join the nationwide effort to raise awareness and funds to create a future with NO LUPUS. Research shows that nearly two-thirds of the public knows little or nothing about lupus beyond the name.   Lupus symptoms can be severe and highly unpredictable and can damage

Lupus Foundation of America Expands Medical-Scientific Staff

The Lupus Foundation of America (Foundation) announces the appointment of Joan T. Merrill, M.D. as Chief Advisor, Clinical Development and Susan Manzi, M.D., M.P.H. as the new Medical Director. In her new role, Dr. Merrill will focus on shifting the drug development paradigm in lupus, including development of a new instrument for use in clinical trials and clinical practice, as well as an online training program for physicians conducting clinical trials, among other innovative projects. “On behalf of the Lupus Foundation of America, Dr. Merrill has made enormous contributions to

Lupus Foundation of America Accepting Applications to Expedite Progress in Lupus Research

The Lupus Foundation of America announces 2016 peer-reviewed research funding to study stem cells in lupus, environmental triggers of lupus and health outcomes in children and teens, in addition to funding for researchers who experience a gap in external funding of ongoing lupus research projects.  “This funding is critical for advancing research on a complex disease that doesn’t conform to conventional wisdom,” said Sandra C. Raymond, President and CEO of the Lupus Foundation of America. “Through our efforts, we are challenging what isn’t working by funding research that will help to

Make Your Mark Turns Events and Celebrations into Fundraising Opportunities to Solve the Cruel Mystery of Lupus

Lupus Foundation of America’s New Online Platform Allows People to Join the Fight Against LupusToday, the Lupus Foundation of America announced the launch of Mark Your Mark™, an online fundraising platform to empower supporters and bring together communities across the country to make their mark in the fight against lupus by creating their own unique event to raise money to support the millions of families impacted by lupus. The Make Your Mark online fundraising platform allows supporters to create their own personal page, and provides individuals with the tools and resources to make the

Lupus Research Findings Provide Evidence of Progress and Hope for Improved Quality of Life among People with Lupus

Findings from Eight Lupus Foundation of America-supported research studiespresented during the American College of Rheumatology Annual Scientific MeetingData from lupus research studies supported by the Lupus Foundation of America (LFA) has provided evidence of progress and hope for solving the cruel mystery of lupus.  Lupus experts presented study data during the American College of Rheumatology (ACR) Annual Scientific Meeting this week in San Francisco.  The Foundation supports research that is aimed at improving the way potential new lupus drugs are developed and tested, find the

Lupus Foundation of America Awarded Multi-million Dollar Grant to Build Awareness and Improve Quality of Life for People with Lupus

WASHINGTON, D.C. (October 28, 2015) — The Lupus Foundation of America (Foundation) has been awarded a multi-million dollar grant from the United States Centers for Disease Control (CDC) to improve symptom recognition, diagnosis and improve the quality of life for people with lupus.   “This is an unprecedented opportunity to build on the sustainable and meaningful programs and services we provide people with lupus and their physicians,” said Conrad Gehrmann, Chair of the Lupus Foundation of America’s National Board of Directors. “As an organization committed to resolving the challenges

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